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Many blessings everyone and happy May! I am in disbelief that 4 months of this year are already behind us. Praying for better to come throughout the year as the world slowly reopens.
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This month is Lyme Disease Awareness Month. Throughout the month I will be posting facts and research that I’ve learned from the field, I will also do some videos as well to share my personal story and hoping I will appear on a couple of shows so I can educate and advocate as I always do.
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Raising awareness about this disease for me is 365 days, but this particular month you may see your timelines blow up in green. Right now in the United States according to the CDC it’s estimated that 476,000 people have this disease and I believe that that is really undercutting the actual numbers.
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My personal story is that I’m a survivor of this disease and I was diagnosed December 2012 after being poorly misdiagnosed 10 times. I was bitten by a tick September 2012. I didn’t have the typical bullseye rash if they tell you to look for nor did I know it wasn’t tick when I was actually bitten and my life has not been the same since. I am doing a whole lot better, but I have what you call, “Chronic Lyme disease” or some call it “Post Lyme syndrome” where thousands of us, millions globally, although we have undergone an array of treatments are still dealing with residual symptoms that just don’t want to quite go away. I also have been treating for a stubborn co-infection called Babesia (babesiosis) and I am the poster child of someone who looks very well and like nothing is wrong with me health wise. I will say again I have come a mighty and marvelous way from where I once was, but there are more days than I care to have where I am symptomatic. Everyday I live with symptoms…sometimes they aren’t really bothersome and other times I have flares.
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My symptoms are not totally in remission yet and when that day comes I will probably wait it out for quite a few months before I deem myself in full remission. I am not saying all this for people to feel sorry for me or to feel bad, I believe in transparency because I want people to learn from what I have been through.
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Anyway please look forward to more posts. If you can gain anything from this post it’s to please be kind to people because you never know despite how they may physically look, that they really may feel crappy internally.
Lastly I have written poetry about what I’ve gone through as well as my fellow Lyme warriors and there is a memoir on the horizon so stay tuned.
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Many blessings and keep the faith.
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